Barriers to treatment optimization and achievement of patients’ goals: perspectives from people living with rheumatoid arthritis enrolled in the ArthritisPower registry

by Kelly Gavigan, W. Benjamin Nowell, Mylene S. Serna, Jeffrey L. Stark, Mohamed Yassine, Jeffrey R. Curtis
Published 2020-01-01

52528 Implementation of Web-Based Patient-Reported Outcome Measures (PROMs) in the Clinical Care of Systemic Lupus Erythematosus (SLE): A Multi-Center Prospective Cohort Study

by Shanthini Kasturi, Lori Lyn Price, David Curtis, W. Benjamin Nowell, Norma Terrin, Jane Salmon, Lisa Mandl, Timothy McAlindon
Published 2021-03-01

OPEX: Development of a novel overall patient experience measure to facilitate interpretation of comparison effectiveness studies.

by Liana Fraenkel, Zhenglin Wei, Christine Ramsey, Carole Wiedmeyer, Kaleb Michaud, Tuhina Neogi, W Benjamin Nowell, Shilpa Venkatachalam, David A Broniatowski
Published 2021-01-01

Which patient-reported outcomes do rheumatology patients find important to track digitally? A real-world longitudinal study in ArthritisPower

by W. Benjamin Nowell, Kelly Gavigan, Carol L. Kannowski, Zhihong Cai, Theresa Hunter, Shilpa Venkatachalam, Julie Birt, Jennifer Workman, Jeffrey R. Curtis
Published 2021-02-01

Machine Learning Approaches to Classify Self-Reported Rheumatoid Arthritis Health Scores Using Activity Tracker Data: Longitudinal Observational Study

by Kaushal Rao, William Speier, Yiwen Meng, Jinhan Wang, Nidhi Ramesh, Fenglong Xie, Yujie Su, W Benjamin Nowell, Jeffrey R Curtis, Corey Arnold
Published 2023-06-01

Wearable activity tracker study exploring rheumatoid arthritis patients’ disease activity using patient-reported outcome measures, clinical measures, and biometric sensor data (the...

by Laura Stradford, Jeffrey R. Curtis, Patrick Zueger, Fenglong Xie, David Curtis, Kelly Gavigan, Cassie Clinton, Shilpa Venkatachalam, Esteban Rivera, W. Benjamin Nowell
Published 2024-04-01

Patient perspectives on the pathway to psoriatic arthritis diagnosis: results from a web-based survey of patients in the United States

by Alexis Ogdie, W. Benjamin Nowell, Eddie Applegate, Kelly Gavigan, Shilpa Venkatachalam, Marie de la Cruz, Emuella Flood, Ethan J. Schwartz, Beverly Romero, Peter Hur
Published 2020-01-01

Real-World Patient Experience on the Path to Diagnosis of Ankylosing Spondylitis

by Alexis Ogdie, W. Benjamin Nowell, Regan Reynolds, Kelly Gavigan, Shilpa Venkatachalam, Marie de la Cruz, Emuella Flood, Ethan J. Schwartz, Beverly Romero, Yujin Park
Published 2019-04-01

Balancing COVID‐19 Risk With Physical and Mental Wellness: Perspectives of Patients With Autoimmune Rheumatic Diseases Throughout the Pandemic

by Chelsea Rapoport, Courtney Wells, Guadalupe Torres, Reynaldo Ortiz‐Maldonado, Shilpa Venkatachalam, Laura Stradford, Kelly Gavigan, Barbara Boyd‐Floering, Maria I. Danila, W. Benjamin Nowell, Kristine Carandang
Published 2023-06-01

A Real-World Effectiveness Study Using a Mobile Application to Evaluate Early Outcomes with Upadacitinib in Rheumatoid Arthritis

by Leslie R. Harrold, Patrick Zueger, W. Benjamin Nowell, Taylor Blachley, Amy Schrader, Paul R. Lakin, David Curtis, Laura Stradford, Shilpa Venkatachalam, Namita Tundia, Pankaj A. Patel
Published 2023-09-01

Tough Choices: Exploring Medication Decision‐Making During Pregnancy and Lactation Among Women With Inflammatory Arthritis

by Mehret Birru Talabi, Amanda M. Eudy, Malithi Jayasundara, Tayseer Haroun, W. Benjamin Nowell, Jeffrey R. Curtis, Rachelle Crow‐Hercher, Whitney White, Seth Ginsberg, Megan E. B. Clowse
Published 2021-07-01

Patient Perceptions of Unmet Medical Need in Rheumatoid Arthritis: A Cross-Sectional Survey in the USA

by Christine Radawski, Mark C. Genovese, Brett Hauber, W. Benjamin Nowell, Kelly Hollis, Carol L. Gaich, Amy M. DeLozier, Kelly Gavigan, Maria Reynolds, Anabela Cardoso, Jeffrey R. Curtis
Published 2019-08-01

PROMIS Fatigue short forms are reliable and valid in adults with rheumatoid arthritis

by Clifton O. Bingham III, Anna Kristina Gutierrez, Alessandra Butanis, Vivian P. Bykerk, Jeffrey R. Curtis, Amye Leong, Anne Lyddiatt, W. Benjamin Nowell, Ana Maria Orbai, Susan J. Bartlett
Published 2019-02-01

Evaluation of an Intervention to Support Patient‐Rheumatologist Conversations About Escalating Treatment in Patients with Rheumatoid Arthritis: A Proof‐of‐Principle Study

by Maria I. Danila, Lang Chen, Eric M. Ruderman, Justin K. Owensby, Ronan O’Beirne, Joshua A. Melnick, Leslie R. Harrold, David Curtis, W. Benjamin Nowell, Jeffrey R. Curtis
Published 2022-04-01

Pregnancy, Periods, and “The Pill”: Exploring the Reproductive Experiences of Women with Inflammatory Arthritis

by Mehret Birru Talabi, Amanda M. Eudy, Malithi Jayasundara, Tayseer Haroun, W. Benjamin Nowell, Jeffrey R. Curtis, Rachelle Crow‐Hercher, C. Whitney White, Seth Ginsberg, Megan E. B. Clowse
Published 2019-04-01

Harnessing health plan enrollee data to boost membership in patient-powered research networks

by Xiaoxue Chen, Abiy Agiro, W. Benjamin Nowell, Sara Loud, Robert McBurney, Kalen Young, Rebecca Sutphen, Elizabeth Bourquardez Clark, Cristina M. Burroughs, Jeffrey R. Curtis, Antoine G. Sreih, Peter A. Merkel, Kevin Haynes
Published 2020-05-01

Effects of the COVID‐19 Pandemic on Patients Living With Vasculitis

by Shubhasree Banerjee, Michael George, Kalen Young, Shilpa Venkatachalam, Jennifer Gordon, Cristina Burroughs, David Curtis, Marcela Ferrada, Kelly Gavigan, Peter C. Grayson, Joyce Kullman, Maria I. Danila, Jeffrey R. Curtis, Dianne G. Shaw, W. Benjamin Nowell, Peter A. Merkel, the Vasculitis Patient‐Powered Research Network
Published 2021-01-01

Healthcare disparities: patients’ perspectives on barriers to joint replacement

by Susan M. Goodman, Insa Mannstadt, J. Alex B. Gibbons, Mangala Rajan, Anne Bass, Linda Russell, Bella Mehta, Mark Figgie, Michael L. Parks, Shilpa Venkatachalam, W. Benjamin Nowell, Collin Brantner, Geyanne Lui, Andrea Card, Peggy Leung, Henry Tischler, Sarah R. Young, Iris Navarro-Millán
Published 2023-12-01

Engaging Multistakeholder Perspectives to Identify Patient‐Centered Research Priorities Regarding Vaccine Uptake Among Adults With Autoimmune Conditions

by Shilpa Venkatachalam, Kelly Gavigan, Shubhasree Banerjee, Jennifer Gordon, Lisa Emrich, Hope Sullivan, Ashira Blazer, Brittany Banbury, Kimberly N. Weaver, Laura Stradford, Vandana Dronadula, Angela Degrassi, Peter A. Merkel, Dianne G. Shaw, Kalen Larsen, Jeffrey R. Curtis, Robert N. McBurney, Michael D. Kappelman, Michael D. George, W. Benjamin Nowell
Published 2023-06-01

Web-Based Mindfulness-Based Interventions for Well-being: Randomized Comparative Effectiveness Trial

by Louisa G Sylvia, Mitchell R Lunn, Juno Obedin-Maliver, Robert N McBurney, W Benjamin Nowell, Rachel L Nosheny, Richard A Mularski, Millie D Long, Peter A Merkel, Mark J Pletcher, Roberta E Tovey, Christopher Scalchunes, Rebecca Sutphen, Ann S Martin, Elizabeth J Horn, Megan O'Boyle, Lisa Pitch, Michael Seid, Susan Redline, Sophie Greenebaum, Nevita George, Noah J French, Caylin M Faria, Nicha Puvanich, Dustin J Rabideau, Caitlin A Selvaggi, Chu Yu, Stephen V Faraone, Shilpa Venkatachalam, Debbe McCall, Sharon F Terry, Thilo Deckersbach, Andrew A Nierenberg
Published 2022-09-01