Fundamental Outcome Measurement: Selecting Patient Reported Outcome Instruments and Interpreting the Data they Produce

by Stephen P McKenna, Alice Heaney, Paul C Langley
Published 2021-05-01

Cross-cultural adaptation of the Cambridge Pulmonary Hypertension Outcome Review for use in patients with pulmonary hypertension in Colombia

by Claudio Villaquirán, Socorro Moreno, Rubén Dueñas, Paola Acuña, Juan Ricardo Lutz, Jeanette Wilburn, Alice Heaney

A qualitative study of the impact of plexiform neurofibromas on need fulfilment in adults with neurofibromatosis type 1

by Alice Heaney, Jeanette Wilburn, Shannon Langmead, Jaishri Blakeley, Susan Huson, Carly Jim, Stephen P McKenna
Published 2019-02-01

The development of the PlexiQoL: A patient‐reported outcome measure for adults with neurofibromatosis type 1‐associated plexiform neurofibromas

by Alice Heaney, Jeanette Wilburn, Matthew Rouse, Shannon Langmead, Jaishri O. Blakeley, Susan Huson, Stephen P. McKenna
Published 2020-12-01

Psoriatic Arthritis Quality of Life Questionnaire: translation, cultural adaptation and validation into Brazilian Portuguese language

by Rafaela Silva Guimaraes Gonçalves, Alice Heaney, Stephen P. McKenna, Jonas Braynner Carvalho, Maria Eduarda Lima Vidal, Marina Coelho Mores de Brito, Angela Luzia Branco Pinto Duarte
Published 2021-02-01

Adaptation and Validation of the Cambridge Pulmonary Hypertension Outcome Review (CAMPHOR) for Croatia

by Ana Hećimović, Alice Heaney, Stephen P. McKenna, Latinka Basara, Marko Jakopović, Andrea Vukić Dugac, Gzim Redžepi, Cecilija Rotim, Miroslav Samaržija, Nataša Jokić-Begić, Sanja Popović-Grle
Published 2019-01-01

Assessment of the performance of the Brazilian Portuguese Nottingham Health Profile in adult growth hormone deficiency and pulmonary hypertension [version 2; peer review: 2 approve...

by Alice Heaney, Rafael W. R. de Oliveira, Mariana Bizzi, Ricardo Amorim Correa, Monica Corso Pereira, Suelem Simao Mol, Beatriz Santana Soares, Stephen P. McKenna, Antonio Ribeiro-Oliveira Jr, Study Investigators
Published 2021-08-01

Adaptation and validation of the quality of life assessment of the Cambridge pulmonary hypertension outcome review (CAMPHOR) for Brazil

by Ricardo Amorim Corrêa, Monica Corso Pereira, Mariana Ferreira Bizzi, Rafael W. R. de Oliveira, Camila Farnese Rezende, Bruna Cristina Marabita Tavares de Oliveira, Alice Heaney, Stephen P. McKenna, Antonio Ribeiro-Oliveira
Published 2020-06-01